ReCODE Health is here to support researchers, developers, participants and institutions to conduct digital health research. Our value proposition is to increase awareness of ethical principles and practices from the earliest stages of technology design to the deployment of digital health research.
Empowering Research Ethics Through Collaboration
The CORE Platform
The CORE platform is a global resource with over 700 members. Our goal is to increase contributions to the CORE Resource Library and interaction among the community via the Q&A Forum. Help us help you!
Tools
We are developing tools to help researchers and IRBs to evaluate tech used in health research (e.g., apps, wearable sensors)
Resource Library
We are looking for instructional modules to increase data and technology literacy (e.g., digital phenotyping, digital metadata and privacy). If you have educational resources to share, add them to our Resource Library.
Meet the Team
Investigators
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Alan J. Card, PhD, MPH Co-Founder |
Camille Nebeker, EdD, MS Executive Director/Co-Founder |
Nadir Weibel, PhD Co-Founder
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Brian Minnis, PhD, MPP, BA Postdoc |
Staff Members
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Brittany York, MPH Project Manager |
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Daniah Kareem Research Assistant |
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Daniela Vital, MPH Program Manager
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Ramona Pindus Research Assistant |
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Summer Zhu, MPH Research Assistant |
Education and Training
At ReCODE | health, we strive to increase research literacy and capacity among researchers and community members through our educational initiatives including courses, webinars, and publications.
About Our Courses
Building Research Integrity and Capacity (BRIC) program, a bilingual curriculum in Spanish and English designed to provide community health workers with foundational training in research bioethics.
Courses
An Interactive Guide for Promotores de Salud/Community Health Workers
This course is designed to increase research literacy and awareness of ethical research practices among community members involved in academic research. Our target learners are research team members, including Promotores and Community Health Workers, who assist with designing and implementing community and clinic-based health research.
Why do Promotores/CHWs need BRIC training?
Promotores/CHWs are essential members of the research team and, as such, should have access to effective and relevant training. Most research ethics education is designed for academics who have extensive training in research design and methods. We designed BRIC to build research capacity among individuals with little formal academic research training yet involved with the design, implementation, and reporting of community health research. If Promotores/CHWs have an understanding of how research is designed and implemented, they will be better able to carry out their responsibilities when supporting a research study.
Designing Research to Improve Study Recruitment
We have partnered with the Altman Clinical and Translational Research Institute (ACTRI) to create a course for researchers who want to improve study recruitment strategies. Designing Research to Improve Study Recruitment applies the principles of respect for persons, beneficence and justice across the lifespan of a research project.
This course objective is to increase awareness about successful recruitment strategies.
Why do academic trainees need to learn how to design research to include various communities?
The involvement of communities in research studies is critically important to informing healthcare policies and practices. Researchers who plan to involve key populations in research will benefit from learning how to plan and conduct responsible research through respectful and authentic partnerships.
Research and Tools
Research
ReCODE Health was initiated with UC San Diego Center Launch program funding. Since its start-up, ReCODE Health's research focus has been on improving the informed consent process, exploring digital health research ethics, and expanding knowledge on the evolving challenges of artificial intelligence use in digital health research. In 2021, ReCODE Health received funding from the National Scientific Foundation (NSF) and the Patient-Centered Outcomes Research Institute (PCORI), supporting our work to explore how Human-Computer Interaction (HCI) graduate programs integrate ethics education, expand on the understanding of risks associated with digital health, and find ways to convey information during the informed consent process best. Learn more about ReCODE Health Research.
Tools
Digital Health Framework and Checklist (DHC)
The resulting framework consists of four intersecting domains including:
- 1- access and usability,
- 2- risks and benefits,
- 3- privacy, and
- 4- data management
Digital Health Checklist for Researchers
The DHC was developed to fill a gap in guidance for digital health researchers. However, it can be useful to technology developers, ethics boards, clinical personnel, and people considering participation in a digital health study. The checklist was developed in consultation with researchers affiliated with the Society for Behavioral Medicine interested in creating safe and responsible digital health research.
We thank those who have contributed and welcome suggestions for improvement.
Access the Digital Health Checklist
To cite the checklist, please use:
Nebeker, C., Ellis, R.B., Torous, J. (2019). Digital Health Checklist for Researchers (DHC_R) Accessed on [Date] from ReCODE Health https://recode.health/tools/
Related publications:
Nebeker, C., Bartlett Ellis, R. and Torous, J. (2019) Development of a Decision-making Checklist Tool to Support Technology Selection in Digital Health Research, Translational Behavioral Medicine ibz074, https://doi.org/10.1093/tbm/ibz074
Nebeker, C., Torous, J., Bartlett Ellis, R. (2019). Building the case for actionable ethics in digital health research supported by artificial intelligence. BMC Medicine, 17(1), 137; http//:DOI: 10.1186/s12916-019-1377-7
ReCODE.Health tools are licensed under a Creative Commons Attribution-Non-Commercial 4.0 International License. 2018 – 2022.
CORE Platform
The CORE Platform is used to support researchers, developers, participants, and institutions to conduct digital health research by connecting network members, hosting discussions, and sharing resources through our resource library.
Non-Discrimination Statement
In accordance with applicable Federal and State law and University policy, the University of California does not discriminate, or grant preferences, on the basis of race, color, national origin, religion, sex, disability, and/or other protected categories.
More information about Proposition 209 can be found here.
More information about the University of California Anti-Discrimination Policy can be found here.