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ReCODE Health

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ReCODE Health is here to support researchers, developers, participants and institutions to conduct digital health research. Our value proposition is to increase awareness of ethical principles and practices from the earliest stages of technology design to the deployment of digital health research.

  

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The CORE platform is a global resource with over 700 members. Our goal is to increase contributions to the CORE Resource Library and interaction among the community via the Q&A Forum. Help us help you!

 

We are developing tools to help researchers and IRBs to evaluate tech used in health research (e.g., apps, wearable sensors)


We are looking for instructional modules to increase data and technology literacy (e.g., digital phenotyping, digital metadata and privacy). If you have educational resources to share, add them to our Resource Library.

Meet the Team

Investigators

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Alan J. Card, PhD, MPH

Co-Founder

 

Camille Nebeker, EdD, MS

Executive Director/Co-Founder

 

Nadir Weibel, PhD

Co-Founder

 

 

Brian Minnis, PhD, MPP, BA

Postdoc

 

Staff Members

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 Brittany York, MPH

Project Manager

 

Daniah Kareem

Research Assistant

 

 

Daniela Vital, MPH

Program Manager

 

 

 

Ramona Pindus

Research Assistant

 

Summer Zhu, MPH

Research Assistant

Education and Training

At ReCODE | health, we strive to increase research literacy and capacity among researchers and community members through our educational initiatives including courses, webinars, and publications.

 

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About Our Courses

BRIC was initiated in 2002 with funding from the National Institutes of Health. Our goal was to educate community members, including Community Health Workers (CHWs) and Promotores, who were assisting academic researchers. CHWs and Promotores were involved as members of the research team to assist with Latino health research studies, yet had no formal research training. Without appropriate training, researchers were concerned about the scientific integrity of their community based/placed research. An initial goal of BRIC was to develop culturally-tailored, language-appropriate, formal research education that included an introduction to the scientific method and the importance of conducting research ethically and responsibly.

 

  Courses

An Interactive Guide for Promotores de Salud/Community Health Workers 

This course is designed to increase research literacy and awareness of ethical research practices among community members involved in academic research. Our target learners are research team members, including Promotores and Community Health Workers, who assist with designing and implementing community and clinic-based health research. 

Why do Promotores/CHWs need BRIC training?  

Promotores/CHWs are essential members of the research team and, as such, should have access to effective and relevant training. Most research ethics education is designed for academics who have extensive training in research design and methods. We designed BRIC to build research capacity among individuals with little formal academic research training yet involved with the design, implementation, and reporting of community health research. If Promotores/CHWs have an understanding of how research is designed and implemented, they will be better able to carry out their responsibilities when supporting a research study.

 

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Designing Research for Diversity 

We have partnered with the Altman Clinical and Translational Research Institute (ACTRI) in developing a course for researchers to design and carry out research involving Latino and other underrepresented populations. Designing Research for Diversity (DRD) applies the principles of respect for persons, beneficence and justice across the lifespan of a research project. Visit ReCODE Health here.

This course is designed to increase awareness about engaging, recruiting, and working with diverse populations in research

Why do academic trainees need to learn how to design research to include diverse communities? 

The inclusion of diverse communities in research studies is critically important to informing healthcare policies and practices. Researchers who plan to involve diverse populations in research will benefit from learning how to plan and conduct respectful and responsible research through respectful and authentic partnerships

 

Access the Courses

 

 

Research and Tools

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Research

ReCODE Health was initiated with UC San Diego Center Launch program funding. Since its start-up, ReCODE Health's research focus has been on improving the informed consent process, exploring digital health research ethics, and expanding knowledge on the evolving challenges of artificial intelligence use in digital health research. In 2021, ReCODE Health received funding from the National Scientific Foundation (NSF) and the Patient-Centered Outcomes Research Institute (PCORI), supporting our work to explore how Human-Computer Interaction (HCI) graduate programs integrate ethics education, expand on the understanding of risks associated with digital health, and find ways to convey information during the informed consent process best. Learn more about ReCODE Health Research.

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Tools

Digital Health Framework and Checklist (DHC)

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The Digital Health Framework was developed with a group of subject matter experts and evaluated by digital health researchers.

The resulting framework consists of four intersecting domains including:

  • 1- access and usability,

  • 2- risks and benefits,

  • 3- privacy, and

  • 4- data management

These domains were identified as the key factors critical to decision-making. Ethical principles of respect for the person, beneficence, justice (Belmont Report) and respect for law and public interest (Menlo Report) form its core.

 

Digital Health Checklist for Researchers

The DHC was developed to fill a gap in guidance for digital health researchers. However, it can be useful to technology developers, ethics boards, clinical personnel, and people considering participation in a digital health study. The checklist was developed in consultation with researchers affiliated with the Society for Behavioral Medicine interested in creating safe and responsible digital health research.

We thank those who have contributed and welcome suggestions for improvement.

To provide comments, please complete this short survey.

 

Access the Digital Health Checklist

  

To cite the checklist, please use:

Nebeker, C., Ellis, R.B., Torous, J. (2019). Digital Health Checklist for Researchers (DHC_R) Accessed on [Date] from ReCODE Health https://recode.health/tools/

Related publications:

Nebeker, C., Bartlett Ellis, R. and Torous, J. (2019) Development of a Decision-making Checklist Tool to Support Technology Selection in Digital Health Research, Translational Behavioral Medicine ibz074, https://doi.org/10.1093/tbm/ibz074

Nebeker, C., Torous, J., Bartlett Ellis, R. (2019). Building the case for actionable ethics in digital health research supported by artificial intelligence. BMC Medicine, 17(1), 137; http//:DOI: 10.1186/s12916-019-1377-7

 

 

 

ReCODE.Health tools are licensed under a Creative Commons Attribution-Non-Commercial 4.0 International License. 2018 – 2022.

CORE Platform

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The CORE Platform is used to support researchers, developers, participants, and institutions to conduct digital health research by connecting network members, hosting discussions, and sharing resources through our resource library.

 

Access the CORE Platform

 

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